We have been so busy this last week getting into a new routine. Hannah is getting PT, OT, and speech starting soon from Holy Cross Health Care. Hannah has baffled us with the continuation of daily break outs of hives. This is now 3 1/2 straight weeks of this and daily we have to give her at least 4 benedrylls (100mg) to even help her. Her blood pressure has also been much lower than normal and her coloring all over the place. I will need to order a pediatric blood pressure monitor today so we can keep a closer eye on this. So Tim and I have been filled with worry and consumed with trying to find the right doctor or where to turn with this. We have already talked to the surgeon and rehab doctors. This is what is hard about our health care system. You have to trust your instincts and have some background knowledge when to know things are not right. But then you don't have all the answers so you have to go advocating even when it wears you out...to keep asking and trying to get to the base of the problem. I am so fortunate to have the time...support...and experiences to keep the course and not give up until my instincts are at rest!
We took Hannah to see Dr. Taylor, her pediatrician, and he is trying to help us see a specialist in the allergy and immunology field, Dr. Wood at Hopkins. If not this we will need to see a neurologist as well. Hannah is very scared in the car. I don't think she is hurting but little whimpers come as she probably feels all bumps in the road and knows she is weaker.
Carly started her 3 hour per day drivers ed class last night. She and I survived her 31/2 hour wait at the Clopper road DMV to get her learners. Thought she would crawl out of her skin with all the different lines and waiting but came up with the prized photo/card at the end. Now to figure out how to teach her how to drive with two big vans...
Hope you all are having a great rest of your summer. Will keep you informed of Hannah's progress. Thank you for the cards, dinners, and acts of love!
Love, Katie....and the Larkins 8/5
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4 comments:
Wow--you sound super busy. I surely hope you can find the answer to these hives. They have to be uncomfortable for Hannah and worrisome for you. Hives are so strange--I know you wish they would just go away. Good luck with all of the OT and PT and every other "T" scheduled for Hannah. And good luck to Carly--she made it through the MVA and that has to be the worst part! We are back in town now and can help with anything! Please call!! Sending love your way and praying always! Barbara
We just got to thinking...if Hannah had beehives she would either have really big hair and land a role on Broadway in Hairspray, or you would have collected gallons of honey by now and be selling jars of it on the front lawn as a souce of income to buy Benadryl:)
It's hard to see the humor as you fight away the itchies...but with your persistence and the right expert, Hannah (the one true woman of mystery)will start to feel better soon!
Hannah will always be our #1 Honey!!
Hugs,
The Rubins
Hello Larkin family!
It is great to see Hannah looking so happy! I hope that the answers to these new questions find you quickly. May OT and PT bring smiles and may the driving classes pass quickly! You are in my thoughts, prayers, wishes and hopes.
Love, Meghan Parker
Hi Larkins....
Much needed catch up here on the blog! So sorry Hannah has the "itchy-scratchies!"Thank goodness for the meds!
Katie and Tim- just keep following your gut, remember you are the MD (Mom and Dad) which can be even more in tune to Hannah's needs than any other MD!
Love to you all!
:+)Rena
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