We are now at Kennedy Krieger. It's time to learn about this new body that is very much taller, heavier, stiffer, and weaker! We even have to teach Hannah how to move her head and keep from keeping it tilted!
Mike worked on Hannah's wheelchair to help make it better for her. She is arching so much...we have decided to make the chair recline so her back mussels don't have to work so hard. She is getting up 2 times a day for about an hour...but that wipes her out she sleeps soundly the rest of the day.
I walked 5 blocks and found her spaghetti at Dinos...and she ate 8 spoonfuls last night. Not her usual plateful but it's a start. She is drinking good.
She had 2 pressure sores we are keeping our eye on but hopefully turning her every 2 hours and putting gel pads will help these areas heal.
We are amongst some amazing inspirational and sad stories here at Kennedy. 2 children have lost their entire family; one to a fire and one to a car accident. So it's a real reality check and gives one perspective. This children are amazing and have such a will to heal and survive. It is a blessing to witness this and live with other parents who have had difficulties.
Thanks for your continued prayers and support. Please be sure to include all the 76 other children who are with us.
-Katie and Hannah
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Hi Kriegerettes,
In honor of Hannah's yummy spaghetti dinner, we decided to compose a jaunty little tune to celebrate the return of solid foods.
Please sing to the tune of "On Top of Spaghetti"
It's Wenesday at Krieger,
and time to work out.
We've got some new hardware,
we're feelin' wiped out!
Sitting's exhausting...and eating's a chore.
We need circulation, to avoid a bed sore.
So let's do some rehab, and roll over in bed...
Then before you know it....you'll be home instead of at the hospital where you don't really want to be and you can eat all of the Italian food, burgers and fries you want, and wear your own jammies;)
Okay, that last part didn't rhyme, but it is relevant!!!
Keep it up ladies, you're doing great!!
Hugs,
The Musically Challenged Rubins
Clearly, we were in such a musical frenzy we temporarily forgot how to spell WEDNESDAY...ooops:(
The Rubins
Hi Larkins,
I love the pictures and am so happy to hear of Hannah's great progress.
We'll keep you in our prayers, and PLEASE let me know if there is anything (I mean ANYTHING) we can do to help!
Natalie
Hi Larkins,
I am so glad Hannah continues to progress. Please make sure to ask if there is anything you need, here in Olney or anywhere.
I hope you are all taking care of yoruselves as well.
Love, Susan Marra
Please give Hannah big hugs & kisses from Uncle Woody and look forward to seeing her in August (hopefully)...
Thank you for updating us on Hannah and keeping us informed of her progress.
The Larkin Family is an inspriational family in itself. I am sure that all of the other familes are happy (and lucky) to have the Larkin's there beside them.
Our continued prayers for Hannah and for all of the families at Kenedy Krieger.
Love- The Hill Family
SO GLAD TO HEAR THE GREAT NEWS. YEA REHAB. BACK TO THE GROVE SOON. WE LEAVE FOR OC SUNDAY UNTIL THE 3RD DON'T KNOW IF I WILL BE ABLE TO GET LAPTOP TO WORK. SO YOU KNOW YOU WILL BE IN OUR PRAYERS EVERYDAY AND I'LL TRY TO GET TO YA SOMEHOW. MY CELL IS 301-385-6595 CALL ANYTIME TO CHAT,SAY HI OR ANY OTHER REASON.
LOVE TO HANNAH
KEEP IT UP
CARUSO
HI HANNAH IT'S RILEY CARUSO AND I HERE THAT YOUR REHAB IS GOING BETTER SO GOOD LUCK WITH THAT AND GET BETTER BIG HUG RILEY CARUSO
Hi Larkins,
I imagine your days are filled with Hannah working hard and then sleeping, working hard and then sleeping.... The body is an amazing tool and the spirit is even more amazing.
You and your 76 friends at KK are in my prayers for continued healing and progress.
Lots and lots of LOVE!
Rena
Hey Katie - thank you for your updates and allowing us to peek into your world. You and your family are truly amazing and an inspiration. xoxox Gayle
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