Thanks again for helping us stay in touch with all of you! Hannah is working so hard and like Rena said, it's true our day is full of medications, working, hugging and sleeping. Hannah can not sit up anymore so we are working on that but because her upper body grew 3 plus inches, her finger tips are the only things that reach! She looks like that game "Tip It" as we are right there to support her.
She is not eating very much...and are working on that. The last two days she has broken out on knees, back of knees, and elbows in a hive like rash. Hannah has really sensitive skin. We are trying to figure this out but it may be the mats she works or the cleaner they use between each patient. Tomorrow she wears long sleeve clothes and we put a sheet on the mat to see if she still breaks out. We are keeping a close eye on two pressure sores she has developed but all and all she is good. They had her rolling over and over yesterday, and working on some tight right sided hamstrings and hip flexer muscles.
Tim came up Friday evening with Carly. Hannah was really happy to see them. Tim brought fresh spaghetti...better than Dino's. When I go back on Sunday, we will try Ledos Pizza or McDonald's Hamburgers compliments of our Rubin Friends who also sent her "Hannah Hamburger shirt!!!"She earns the name well!
It was great to be off the chair bed and in my own bed last night. Even felt good to run the vacuum and pick up the dog hairs as you don't get much cardio work out and vacuuming last night...(not usually was very therapeutic...why is that so...perspective is a powerful thing!)
We are blessed to have really great roommates (Julie and Emma) and for living so close Carly got to see how small a room we have 4 people living in and two wheel chairs. It gave her a good visual for college! It's just a little funny that Emma only eats eggs, cheese, and pudding everyday and Hannah eats hamburgers and spaghetti, so between them we see the same foods for most all meals!
Our very good friend, Todd came by to see her yesterday, he works at at Bayview J Hopkins and he said she looked good! He looked great to Hannah who has always been smitten with him.
Today when Carly gets up we are going to spend the day together just hanging out. It's nice to get dates like this too while Tim gets caught up on his Hannah kisses. Hope everyone has a great weekend.
-Katie 7/12
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Who knew housework could provide you with zen-like tranquility? Clearly, we all need to rethink our attitude toward household chores. It sounds like Hannah is allergic to the hospital, as she has a case of hospital hives. Enjoy your girl time at Larkin Manor. We loved spending time with Carly, and we appreciated all of her help to prepare for our Teddy Bear Picnic. Hugs to Hannah and Tim while they enjoy quality father-daughter time. Have a relaxing, uneventful weekend full of rest and recuperation.
Hugs to all,
The Rubins
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